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Why Kids With Autism Should Stream

March 9, 2019 by 2 Comments

Like many therapists who work with adolescents with autism, I frequently get asked for guidance on improving peer relationships as they get older. Contrary to the stereotype, autistic kids do often crave peer relationships, dating, and popularity. It can make adolescence especially poignant as kids with ASD want to establish more independence from parents and gain the esteem of other teens but don’t know how to connect with their peers yet. They can experience heightened social anxiety, and retreat into coping mechanisms which help self-soothe but make them stick out when they very much want to blend in. There can be an uptick in depression, which increases hopelessness and decreases self-care. Decreased self-care leads to poorer hygiene, which makes teens even less popular. Parents, sound familiar?

So how do we interrupt this vicious cycle?

One way is to get your kids streaming online. Streaming, or live-streaming, is the broadcast of content over the internet on platforms such as Twitch or YouTube. The content can include commentary while playing or watching a video game, discussing a television series, plays, presentations on topics of interest, music, etc. You’re probably thinking “Riiiight, what does streaming have to do with helping kids on the spectrum become popular?”

Ok, stay with me here and I’ll give you some reasons:

1. Streaming promotes theory of mind

Anyone who has ever watched a streamer has had the experience of being in the audience. By empowering a teen to stream, we also create an opportunity for them to imagine the other out there watching. Even if they have few viewers to start with, we encourage them to act “as if” they were in a social setting where others have minds and feelings like they do and could respond to them. This reinforces the concepts of theory of mind and empathy, both in the streaming act and later in reviewing recordings.

2. Streaming is a very normative adolescent medium

Whether it be gaming, unboxing, critiquing videos or talking fashion, a majority of teens are now consumers of streaming culture, watching thousands of streams every day. It can be very empowering to let adolescents with autism know that they can be creators of streaming culture as well. Also, it takes the edge off of poor hygiene: In cyberspace everyone smells just fine.

3. Streaming can allow for 21st century social scripting and role play

Children and teens with autism are often being trained in social pragmatics, which has three general components: The ability to use language for different purposes (requesting things, greeting people, passing on information;) the ability to adapt language to changes in listener or environment (speak louder in noisy settings, speak differently to child or adult, give more or less information as needed;) and following unspoken norms or rules of conversation (taking turns speaking, gauging for interest, emphasizing points or emotions.) One way youth with autism can build mastery in social pragmatics is through the use of social scripts, practicing the rules and formula in low-stress environments where the social stakes aren’t as high or immediate. Streaming can provide such a place to do so, where teens can practice greeting viewers, looking directly at camera, pausing to view chat or take Discord questions, enthusiastically thanking viewers for watching, and ask what they might want to see next time, etc.)

4. Streaming allows for review

Streaming can usually be recorded, both the stream and the video recording of the streamer. This can provide the adolescent the opportunity to review and refine their social pragmatics with or without adult feedback. I ask my patients if they want me to watch at any point, and tell them I won’t be offended if they don’t want me to watch. After a stream, ask your teen how they felt when they were doing it. Were they able to forget they were being watched? Did knowing they were streaming live effect their speech or behavior in any way? How did they deal with questions or comments? What did they notice about their viewers? Do they feel energized or depleted afterwards? It can also be important to normalize their reluctance to view the recordings–many of us dislike seeing ourselves on camera, no matter how useful it could be.

5. Streaming allows the teen to behaviorally say “Hey, I want to put myself out there.”

No one starts streaming by accident, but starting a streaming channel can help teens overcome their social reluctance by embedding social engagement in content that they find enjoyable and invigorating. Have you noticed that it can be more invigorating to talk with people about topics that are interesting to you? Autistic kids think so too! The challenge is that a lot of times they are afraid to put themselves out there because they have had years of well-meaning adults talking about their “perseverating” on topics. As I have mentioned elsewhere, this concept is pathologizing and highly subjective: If you talk to me about football for more than 20 seconds, I’ll start to get bored think you’re perseverating. That said, many people can feel overwhelmed and ambivalent in the face of an enthusiastic person going on for a length of time. You know they are trying to engage and want to support that, and yet it feels too much! Streaming lowers the pressure on that for the listener, who can pause or take time off from watching if it gets too much for them, while still being engaged overall. Yes, part of the problem is the interest deficit in the neurotypical person–the problem doesn’t reside solely in the neuro-atypical one!

6. Streaming makes affinity groups larger and more accessible

Many teens on the spectrum have interests and intensity of interests that place them in the minority. This can lead to isolation and lower self-esteem, because they have fewer opportunities for mirroring from peers and their community. There are probably a whole bunch more people in Boston and Atlanta who spent February 3rd, 2019 watching football than My Little Pony, which can make the Bronies out there feel less-than. However, at any given time in the world, there is probably a larger group of MLP fans, and streaming helps flatten the world. Streaming, like technology in general, amplifies things and breaks down barriers. Don’t have anyone to talk My Little Pony or anime with? Start streaming narrations and discussions of episodes, and before you know it, you may have 1,800 people to connect with! There’s something for everyone, even those craving an online marathon of Mr. Rogers episodes..

7. Streaming can help kids develop other life skills

Been struggling with your child to get a job? Take a month or two off from the struggle. Help them set up a streaming channel. Then subscribe to Patreon, a platform that allows creators to accept income from people who want to foster their art. Maybe you can prime the pump a bit, to reinforce the work/income connection. I can’t tell you how many parents send mixed messages about money and work to their kids. Kids think a $50 bill they got in a birthday card from Aunt Mable is “my money” that they earned, when in reality it is a gift. Allowances may or may not be connected to chores, which are often a source of added conflict. Instead, why not have Aunt Mabel become a patron and donate $4 a month for the year to the teen’s streaming channel? That way, there really is a connection between work and income, and Aunt Mabel supports the arts? (Parents may want to self-check here to see if they are biased about their children and the arts. If you think art is not real work or valuable, that only a unique few can make a living from it, or that talent is entirely innate and you have it or don’t, then you are biased about your children and the arts.)

To get started, I recommend using Open Broadcaster Software, which is free and well-supported. Tom’s Hardware has a good reference for getting started here, just keep in mind you can stream much much more than video games, although doing that is cool too!

I do want to acknowledge that encouraging teens to put themselves out there has some real risks. Some of the streams and videos may be pretty quirky, and nothing vanishes completely on the internet. They may encounter hate speech or hurtful comments during the stream or afterwards, just like they may encounter it in life. They may feel very self-conscious after reviewing the stream. But I do think that for many teens with autism (or neurotypical kids for that matter) the rewards can outweigh the risk. Parents want to check for their own tech biases here: Do you support your youngster playing a sport? Risky. How about having them join martial arts, drama club, or run for student office? All risky. So why not encourage them to stream about something they like?

Curating an online presence for others, real and imagined, is actually a component of digital literacy we all need to do sooner or later, online streaming about a topic or activity of interest may give children and teens with autism some valuable practice and sheltered learning. It may also help them meet people in the wider world who share their interests, think they’re cool, and increase their popularity. That seems like a substantial reward to me.

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Innovation is Dangerous & Gaming Causes Asperger’s

October 1, 2011 by 18 Comments

At its heart, diagnosis is about exerting control.  Clinicians want to get some sense of control in understanding a problem.  We link diagnosis to prognosis to control our expectations of how likely and how much we will see a change in the patient’s condition.  Insurance companies want to get a handle on how much to spend on who.  Schools want to control access to resources and organize their student body.  And with the current healthcare situation, the government is sure to use diagnosis as a major part of the criteria in determining who gets what kind of care.

Therapists and Educators do not like to think of ourselves as controlling people.  But we often inadvertently attempt to exert control over our patients and entire segments of the population, by defining something as a problem and then locating it squarely in the individual we are “helping.”

This week has been one of those weeks where I have heard from several different colleagues about workshops they are attending where the presenters are linking Asperger’s with Gaming Addiction:  Not in the sense of “Many people on the Autism Spectrum find success and motivation through the use of video games,” but rather in the sense of “excessive gaming is prevalent in the autistic spectrum community.”

This has always frustrated me, for several reasons, and I decided its time to elaborate on them again:

1. Correlation does not imply Causation.  Although this is basic statistics 101 stuff, therapists and educators continue to make this mistake over and over.  Lots of people with Asperger’s play video games, this is true.  This should not surprise us, because lots of people play video games!  97% of all adolescent boys and 94% of adolescent girls, according to the Pew Research Center.  But we love to make connections, and we love the idea that we are “in the know.”  I can’t tell you how many times when I worked in education and clinics I heard talk of people were “suspected” of having Asperger’s because they liked computers and did not make eye contact.  Really.  If a kiddo didn’t look at the teacher, and liked to spend time on the computer, a suggested diagnosis of Autism couldn’t be far behind.  We like to see patterns in life, even oversimplified ones.

2. Causation often DOES imply bias.  Have you ever stopped to wonder what causes “neurotypical” behavior?  Or what causes heterosexuality for that matter.  Probably not.  We usually try to look for the causation of things we are busily pathologizing in people.  We want everyone to fit within the realm of what the unspoken majority has determined as normal.  Our education system is still prone to be designed like a little factory.  We want to have our desks in rows, our seats assigned, and our tests standardized.  So if your sensory input is a little different, or your neurology atypical, you get “helped.”  Your behavior is labeled as inappropriate if it diverges, and you are taught that you do not have and need to learn social skills.

Educators, parents, therapists and partners of folks on the Austism Spectrum, please repeat this mantra 3 times:

It is not good social skills to tell someone they do not have good social skills.

By the same token, technology, and video games, are not bad or abnormal either.  Don’t you see that it is this consensual attitude that there is something “off” about kids with differences or gamers or geeks that silently telegraphs to school bullies that certain kids are targets?  Yet, when an adolescent has no friends and is bullied it is often considered understandable because they have “poor social skills and spend too much time on the computer.”  Of course, many of the same kids are successfully socializing online through these games, and are active members of guilds where the stuff they hear daily in school is not tolerated on guild chat.

Let’s do a little experiment:  How about I forbid you to go to your book discussion group, poker night, or psychoanalytic institute.  Instead, you need to spend all of your time with the people at work who annoy you, gossip about you and make your life miserable.  Sorry, but it is for your own good.  You need to learn to get along with them, because they are a part of your real life.  You can’t hide in rooms with other weirdos who like talking about things that never happened or happened a long time ago; or hide in rooms with other people that like to spend hours holding little colored pieces of cardboard, sort them, and exchange them with each other for money; or hide in rooms where people interpret dreams and talk about “the family romance.”

I’m sure you get my point.  We have forgotten how little personal power human beings have before they turn 18.  So even if playing video games was a sign of Asperger’s, we need to reconsider our idea that there is something “wrong” with neuro-atypical behaviors.  There isn’t.

A lot of the work I have done with adults on the spectrum has been to help them debrief the trauma of the first 20 years of their lives.  I’ve had several conversations where we’ve realized that they are afraid to ask me or anyone questions about how to do things, because they worried that asking the question was inappropriate or showed poor social skills.  Is that really what you want our children to learn in school and in treatment?  That it is not ok to ask questions?  What a recipe for a life of loneliness and fear!

If you aren’t convinced, please check out this list of famous people with ASD.  They include Actors (Daryl Hannah,) bankers, composers, rock stars, a royal prince and the creator of Pokemon.  Not really surprising when you think about innovation.

3.  Innovation is Dangerous.  Innovation, like art, requires you to want things to be different than the way they are.  Those are the kids that don’t like to do math “that way,” or are seen as weird.  These are the “oversensitive” ones.  These are the ones who spend a lot of time in fantasy, imagining a world that is different.  These are the people I want to have over for hot chocolate and talk to, frankly.

But in our world, innovation is dangerous.  There are unspoken social contracts that support normalcy and bureaucracy (have you been following Congress lately?)  And there are hundreds of our colleagues who are “experts” in trying to get us all marching in lockstep, even if that means killing a different drummer.  When people try to innovate, they are mocked, fired from their jobs, beaten up, put down and ignored.  It takes a great deal of courage to innovate.  The status quo is not neutral, it actively tries to grind those who are different down.

People who are fans of technology, nowadays that means internet and computing, have always been suspect, and treated as different or out of touch with reality.  They spend “too much time on the computer,” we think, until they discover the next cool thing, or crack a code that will help fight HIV.  Only after society sees the value of what they did do they get any slack.

Stop counting the hours your kid is playing video games and start asking them what they are playing and what they like about it.  Stop focusing exclusively on the “poor social skills” of the vulnerable kids and start paying attention to bullies, whether they be playground bullies or experts.  Stop worrying about what causes autism and start worrying about how to make the world a better place for people with it.

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Reputation, Grinding & You

March 18, 2011 by 8 Comments

 

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